5/09/2011

I think I may have lupus, need prayer and/or advice...?

I think I may have lupus, need prayer and/or advice...?I've done tons of research on all types of Lupus and on other immunity disorders for a few years now. The decline in my health started when I had a lot of gastro problems. They were severe for 4 months and bad for a year but b/c I didn't have insurance I just tried elimination diets thinking it may have been a food allergy. Much later I found out that I had the pylori infection that causes ulcers and my doctor thought I was bleeding internally because my iron was very low. I was put on antibiotics for the pylori ( which I know is not considered serious ) and was given iron pills. My doctor also thought a lot of it was in my head (in fact I had to insist that he give me the pylori test) turns out the instincts about my body were correct. He had prescribed me anti-depressants before the blood work came back positive because he thought it might be depression but the anti-d's caused my gastro problems to be worse (yeah, I seem to be really sensitive to meds whether OTC or prescription. Anyway, at the time, ( a little over a year in a half ago ) this same doctor who tested me for h pylori (sp?) said in a follow up visit that because of a long list of varying symptoms (mostly related to the intestines) that I typed out on a sheet for him (and which I had been experiencing for over a year at the time) that I should see a specialist and get my insides examined to be on the safe side.

I had just lost my job and knew I couldn't afford to go to a specialist (G.I.) b/c I didn't have insurance and wasn't eligible for medicaid. (I had already spent about $ 1,700 at my family doctor's.)

Since then, I moved to another state and have free health care because I am so low income and I go to a local clinic. I try to get blood work every few months or so. Last time I was checked for pylori, it was gone (which was about 9-10 months ago). Two months ago, standard blood work was done and everything came out fine. My stomach/intestinal problems have gotten better but are still present. I feel achy a lot but the worst symptoms of all is being very fatigued. I get tired over the smallest thing whether it is a mental or physical task. This isn't some temporary situation. It's been bad for years now. I just keep waiting to get some big improvement so I'm back to my old self but haven't had such an improvement. I've told my doctor this several times but he acts like I'm a hypochondriac and never gives me referrals to a specialist. All he does is prescribe me more pain medication each time...that's NOT going to solve my problem! (Not yelling, just putting emphasis on the not). He doesn't prescribe narcotics but I know pain relievers can be habit forming and even the gentler ones are not good for you, have side effects and get to where they are not as effective once you start taking them for a while.

I almost feel like I need to fake some big attack for someone to take me seriously. I cannot work full time and the smallest thing that doesn't go right can really stress me out because my body and mind already feels naturally stressed all the time. I feel like no one understands and the worst part is, I'm right when it is concerning those that are closest to me because my parents seem to not have a clue about what I'm going through and can't seem to understand or accept the fact that I cannot work full time. I'm sure they are stressed about finances because they are struggling in that area but I can't handle extra stress right now or any stress for that matter. After all, it doesn't cost anything to be a little sympathetic and that free gift would mean a lot to me.

I am not depressed, I mean, maybe I am but it's all situational and didn't happen until I started feeling bad all the time, physically. I used to have a good job, a good salary and a nice apartment but left my job because of these health problems. I was just way too stressed. I'm only unhappy because of the way I physically feel but like a downward spiral, feeling bad physically has stressed me mentally and that has caused emotional problems in my life so it is an endless cycle of physical, mental and spiritual stress.

I try to eat healthy but have no money and am not eligible for food stamps because I live with my parents and they make too much money, (yeah, the government doesn't take into consideration all the expenses my parents have like food, gas, car, insurance, health insurance for the two of them, doctor visits, rent, bills, and the 9 medications my dad is on). They can barely afford to buy basic things for themselves, let alone me. So pretty much I'm stuck with whatever they buy and only ask for frozen mixed vegetables because they aren't very expensive. I don't drink alcohol or soda and have very little sweets/junk food. I'm about 25 pounds overweight at most which isn't much considering I have the fat gene. In the last couple of years I've lost about 10 pounds and have gained a little bit of muscle because I try to stay somewhat active and walk a fe
(Sorry ran out of room, continued at last word I left off with) ...,few times a week. The only time I've been able to be really skinny is when I literally did 4 hrs of hard core exercise a day when I used to be on a traveling/competitive dance team in high school. (All of the people in my family are over 300 pounds and are considered morbidly obese except for me and my both of my parents are the most overweight child in their family). I do my best to make the most out of every situation, to go out and try to have fun doing active things etc... but nothing can hide the fact that my whole being especially my physical body is so much different than it used to be. I am only 26 years old and am a female. I feel old because of my fatigue and achiness. I've also had a lot of situational things that have not gone well in the past couple of years but it seemed that things started not going well after I started feeling really bad, I mean, when you start to get sick what do you typically do?
Usually you just tough it out and still do your job to the best of your ability and try to still be fun with your friends and you try to be as normal as possible but what happens when the days turn to weeks, the weeks to months and the months to years. Eventually, forcing yourself to function normally socially, mentally and physically is going to take a big toll on you when you are sick all the time and constantly feel run down.

From all the research I've done on so many things right here on yahoo answers from previous questions and answers along with research I've done on a lot of other websites, I know that with Lupus your ANA count can be fine in one test but can later be off so it is very difficult to get diagnosed with Lupus. I don't know what to do...My life has been put on hold for soooo long because of the lack of proper medical care. Perhaps I should go to an emergency room? I can't switch doctors and he doesn't seem to take me seriously.
I'm so tired of waiting for an answer and having no results. My bad health is not shaking off through time. Moving back in with my parents, and with not being able to work full time among other things (most of the time I haven't even worked part time consistently), it makes me realize that something needs to change. I have been searching and praying for a change for so long now. If I was given a diagnosis, at least it would give me some peace of mind. I feel people do not understand how much I struggle just day to day to do easy, normal and even (what should be) un-stressful activities. Is there any help out there?

I apologize for such detailed paragraphs but I've wanted to include all of these details for months now and have put it off. I put so many details to avoid unnecessary answers and/or questions. Thank you so much for your patience to all of you that read this whole thing. God Bless You!
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Answer by Run Wild
Hi,
I will keep you in my prayers. I know this is very hard for you and I hope and pray you do not receive insensitive answers and words to your question.
Take care

RW

Answer by Yunn-Tay L
Just remember that it's all God's timing, and just keep trusting in Him. Glorify His name in whatever you do! May God be with you and bless you and your family! I'll pray for you. :)
-fellow Christian ><>

Answer by ShaolinWarrior
Anonymous....it sounds like maybe your main health issue could be what is called in certain circles as "blood sludge." You may want to look this up, it is responsible for a wide range of health issues that modern western medicine is just now discovering.

Blood sludge is basically undigested food particles and oxidized materials floating around inside your blood. This interferes with your immune system...picture it like this...you have a flowing river which is your blood, small boats trying to maneuver around down stream which represent your white blood cells...and then a lot of tree branches and other pollutants within the water, making the water a thick gooey mess. All this "blood tar" prevents your immune system from searching out and destroying invading germs and such.

What I would suggest is purchasing yourself a lot of grade "A" grape juice which contains a lot of natural anti-oxidants and even some other powder form anti-oxidants and begin taking them as often as you can. Anti-oxidants reverse oxidation in your cells and blood particles and clean up your blood so that your immune system can once again function properly. You will also feel your energy return because blood sludge saps your body of that energy, once it is cleansed again your energy will no longer be held back.

Answer by TONNY 9
Luke 8:43-49 A woman was there who had been suffering from chronic bleeding for twelve years. Although she had spent all she had on doctors, no one could heal her.She came up behind Jesus and touched the tassel of his garment, and her bleeding stopped at once.Jesus asked, "Who touched me?" While everyone was denying it, Peter and those who were with him said, "Master, the crowds are surrounding you and pressing in on you."Still Jesus said, "Somebody touched me, because I know that power has gone out of me."When the woman saw that she couldn't hide, she came forward trembling. Bowing down in front of him, she explained in the presence of all the people why she had touched Jesus and how she had been instantly healed.Then he said to her, "Daughter, "YOUR FAITH HAS MADE YOU WELL" (not shouting). Go in peace."
Have faith on Jesus always... and remember that God shows in many ways: doctors,people,friends,etc. but the most important way.. inside you!
You will be in my prayers

I agree with Shaolinw

Answer by Rockford
Wow, that was a lot to read. If your symptoms weren't so close to mine, I would have stopped for sure. Don't waste your time thinking its Lupus. 95% of the people with Lupus have a positive ANA. And even if you happen to be one of those unlucky 5%, you would still have other symptoms like frequent low-grade fevers. No fevers, no lupus. No high sed rate (ESR test), no lupus.

I do believe that you have drop dead fatigue and your body aches. Some people will try to tell you have fibromylagia. Don't accept that answer. When you had low iron, it would have been good if you had a full iron panel done (your total body stores of iron). This would have been useful in telling if your iron was low because of poor diet, heavy periods, low iron because of disease or low iron because your body is not absorbing what you are eating.

I would strongly suggest making a food diary. A food intolerance such as wheat or brewers yeast can make you very tired and have painful joints. You don't have to have Celiac Disease to have a gluten intolerance. I also suggest increasing your vitamin C. Low vitamin C can cause fatigue and depression. I would get your iron retested. Your stomach problems could be chronic gastritis(inflamation of the lining of the stomach).

Your stomach is the first clue and its the one I'd keep focus on. Don't get sidetracked on other symptoms. If you took a lot of advil for the pain, it just makes your stomach worse.

I wouldn't try to self-diagnose yourself. Your doctor will then label you as a hypochondriac. New symptoms may come six months or a year from now which will may make the picture clearer. Try and work one day a week if you can. It will make you feel better about yourself and give you something to talk about when you are with your friends.

I think Shaolinw is on to something with the undigested food. This brings you back to your stomach.

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